For some rare disease patients and their families, their medical condition may not have a cure or proper treatment plan. The uncertainty...

It can be difficult for many rare disease patients and their families to understand their diagnosis or how it can be treated. While there...

Have a family member, friend, co-worker, or classmate dealing with a rare disease? Do you feel the need to advocate more for their...

One of the most challenging issues that rare disease patients and their families struggle to overcome is finding an accomodating...

Whether you've recently been diagnosed with a rare disease or have known your diagnosis for years, dealing with a rare and sometimes...

The issues you take on as a rare disease patient can take a toll on your mental health. Dealing with a rare disease, which often has no...

According to NORD, approximately 1 in 10 Americans suffers from a rare disease. Within this population, there are several types of rare...

Often, many minority disease patients deal with health inequity regarding their healthcare accessibility and treatment. Fortunately, the...

The ongoing COVID-19 pandemic has dramatically affected almost every aspect of our lives, such as our health, work, school,...

Yes, scholarships exist for patients and families dealing with rare diseases. Finding financial aid for college can be super stressful,...

Being a parent means that you're taking on the life-long responsibility of ensuring your child lives a long, healthy life. When your...

At times, many people with rare diseases feel as though they don't have much of a support system behind them, given the rarity of their...

Did you know that there was an international day celebrating those dealing with rare diseases? Rare Disease Day, celebrated on the last...