Rare blue transparent logo.png
  • HOME

  • ABOUT

  • GET INVOLVED

  • BLOG

  • CONTACT

  • More

    Use tab to navigate through the menu items.
    TAKE ACTION
    How to be a Patient Advocate for Rare Disease Patients
    Areeg Sweis
    • Oct 4, 2021
    • 2 min

    How to be a Patient Advocate for Rare Disease Patients

    Have a family member, friend, co-worker, or classmate dealing with a rare disease? Do you feel the need to advocate more for their...
    Best Hospitals & Clinics for Rare Disease Patients
    Areeg Sweis
    • Sep 27, 2021
    • 3 min

    Best Hospitals & Clinics for Rare Disease Patients

    One of the most challenging issues that rare disease patients and their families struggle to overcome is finding an accomodating...
    How to Cope with a Rare Disease
    Areeg Sweis
    • Sep 12, 2021
    • 2 min

    How to Cope with a Rare Disease

    Whether you've recently been diagnosed with a rare disease or have known your diagnosis for years, dealing with a rare and sometimes...
    The Association Between Mental Health and Rare Disease
    Areeg Sweis
    • Sep 12, 2021
    • 2 min

    The Association Between Mental Health and Rare Disease

    The issues you take on as a rare disease patient can take a toll on your mental health. Dealing with a rare disease, which often has no...
    Why Sickle Cell Anemia Affects African Americans More Than Any Other Ethnicity
    Areeg Sweis
    • Sep 12, 2021
    • 2 min

    Why Sickle Cell Anemia Affects African Americans More Than Any Other Ethnicity

    According to NORD, approximately 1 in 10 Americans suffers from a rare disease. Within this population, there are several types of rare...
    How the Rare Disease Diversity Coalition advocates for Minority Rare Disease Patients
    Areeg Sweis
    • Sep 3, 2021
    • 2 min

    How the Rare Disease Diversity Coalition advocates for Minority Rare Disease Patients

    Often, many minority disease patients deal with health inequity regarding their healthcare accessibility and treatment. Fortunately, the...
    How to deal with the ongoing COVID-19 pandemic as a Rare Disease Patient
    Areeg Sweis
    • Sep 3, 2021
    • 2 min

    How to deal with the ongoing COVID-19 pandemic as a Rare Disease Patient

    The ongoing COVID-19 pandemic has dramatically affected almost every aspect of our lives, such as our health, work, school,...
    5 Scholarships for Rare Disease Patients
    Areeg Sweis
    • Aug 28, 2021
    • 2 min

    5 Scholarships for Rare Disease Patients

    Yes, scholarships exist for patients and families dealing with rare diseases. Finding financial aid for college can be super stressful,...
    Four Tips for Parents with Children Suffering from a Rare Disease
    Areeg Sweis
    • Aug 28, 2021
    • 2 min

    Four Tips for Parents with Children Suffering from a Rare Disease

    Being a parent means that you're taking on the life-long responsibility of ensuring your child lives a long, healthy life. When your...
    A Dive Into NORD, An Organization Supporting Rare Disease Patients & Families
    Areeg Sweis
    • Aug 20, 2021
    • 2 min

    A Dive Into NORD, An Organization Supporting Rare Disease Patients & Families

    At times, many people with rare diseases feel as though they don't have much of a support system behind them, given the rarity of their...
    Understanding Rare Disease Day
    Areeg Sweis
    • Aug 20, 2021
    • 1 min

    Understanding Rare Disease Day

    Did you know that there was an international day celebrating those dealing with rare diseases? Rare Disease Day, celebrated on the last...

     

    2022 RARE DOCUMENTARY

    By Created Above Designs