Areeg SweisOct 4, 20212 minHow to be a Patient Advocate for Rare Disease PatientsHave a family member, friend, co-worker, or classmate dealing with a rare disease? Do you feel the need to advocate more for their...
Areeg SweisSep 27, 20213 minBest Hospitals & Clinics for Rare Disease PatientsOne of the most challenging issues that rare disease patients and their families struggle to overcome is finding an accomodating...
Areeg SweisSep 12, 20212 minHow to Cope with a Rare DiseaseWhether you've recently been diagnosed with a rare disease or have known your diagnosis for years, dealing with a rare and sometimes...
Areeg SweisSep 12, 20212 minThe Association Between Mental Health and Rare DiseaseThe issues you take on as a rare disease patient can take a toll on your mental health. Dealing with a rare disease, which often has no...
Areeg SweisSep 12, 20212 minWhy Sickle Cell Anemia Affects African Americans More Than Any Other EthnicityAccording to NORD, approximately 1 in 10 Americans suffers from a rare disease. Within this population, there are several types of rare...
Areeg SweisSep 3, 20212 minHow the Rare Disease Diversity Coalition advocates for Minority Rare Disease PatientsOften, many minority disease patients deal with health inequity regarding their healthcare accessibility and treatment. Fortunately, the...
Areeg SweisSep 3, 20212 minHow to deal with the ongoing COVID-19 pandemic as a Rare Disease PatientThe ongoing COVID-19 pandemic has dramatically affected almost every aspect of our lives, such as our health, work, school,...
Areeg SweisAug 28, 20212 min5 Scholarships for Rare Disease PatientsYes, scholarships exist for patients and families dealing with rare diseases. Finding financial aid for college can be super stressful,...
Areeg SweisAug 28, 20212 minFour Tips for Parents with Children Suffering from a Rare DiseaseBeing a parent means that you're taking on the life-long responsibility of ensuring your child lives a long, healthy life. When your...
Areeg SweisAug 20, 20212 minA Dive Into NORD, An Organization Supporting Rare Disease Patients & FamiliesAt times, many people with rare diseases feel as though they don't have much of a support system behind them, given the rarity of their...
Areeg SweisAug 20, 20211 minUnderstanding Rare Disease DayDid you know that there was an international day celebrating those dealing with rare diseases? Rare Disease Day, celebrated on the last...