Areeg Sweis
Why Rare Disease Patients Should Join Clinical Trials
For some rare disease patients and their families, their medical condition may not have a cure or proper treatment plan. The uncertainty...
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Areeg Sweis
- May 31, 2022
- 2 min
Gene Therapy for Rare Disease Patients
It can be difficult for many rare disease patients and their families to understand their diagnosis or how it can be treated. While there...
Areeg Sweis
- Oct 3, 2021
- 2 min
How to be a Patient Advocate for Rare Disease Patients
Have a family member, friend, co-worker, or classmate dealing with a rare disease? Do you feel the need to advocate more for their...
Areeg Sweis
- Sep 27, 2021
- 3 min
Best Hospitals & Clinics for Rare Disease Patients
One of the most challenging issues that rare disease patients and their families struggle to overcome is finding an accomodating...
Areeg Sweis
- Sep 12, 2021
- 2 min
How to Cope with a Rare Disease
Whether you've recently been diagnosed with a rare disease or have known your diagnosis for years, dealing with a rare and sometimes...
Areeg Sweis
- Sep 12, 2021
- 2 min
The Association Between Mental Health and Rare Disease
The issues you take on as a rare disease patient can take a toll on your mental health. Dealing with a rare disease, which often has no...
Areeg Sweis
- Sep 12, 2021
- 2 min
Why Sickle Cell Anemia Affects African Americans More Than Any Other Ethnicity
According to NORD, approximately 1 in 10 Americans suffers from a rare disease. Within this population, there are several types of rare...
Areeg Sweis
- Sep 3, 2021
- 2 min
How the Rare Disease Diversity Coalition advocates for Minority Rare Disease Patients
Often, many minority disease patients deal with health inequity regarding their healthcare accessibility and treatment. Fortunately, the...
Areeg Sweis
- Sep 3, 2021
- 2 min
How to deal with the ongoing COVID-19 pandemic as a Rare Disease Patient
The ongoing COVID-19 pandemic has dramatically affected almost every aspect of our lives, such as our health, work, school,...
Areeg Sweis
- Aug 28, 2021
- 2 min
5 Scholarships for Rare Disease Patients
Yes, scholarships exist for patients and families dealing with rare diseases. Finding financial aid for college can be super stressful,...
Areeg Sweis
- Aug 28, 2021
- 2 min
Four Tips for Parents with Children Suffering from a Rare Disease
Being a parent means that you're taking on the life-long responsibility of ensuring your child lives a long, healthy life. When your...
Areeg Sweis
- Aug 20, 2021
- 2 min
A Dive Into NORD, An Organization Supporting Rare Disease Patients & Families
At times, many people with rare diseases feel as though they don't have much of a support system behind them, given the rarity of their...
Areeg Sweis
- Aug 20, 2021
- 1 min
Understanding Rare Disease Day
Did you know that there was an international day celebrating those dealing with rare diseases? Rare Disease Day, celebrated on the last...
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