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  • Areeg Sweis

How to deal with the ongoing COVID-19 pandemic as a Rare Disease Patient

The ongoing COVID-19 pandemic has dramatically affected almost every aspect of our lives, such as our health, work, school, relationships, and even traveling. While many of us were relieved when a vaccine was released earlier this year, believing the pandemic was ending, we may face another lockdown due to the emerging COVID-19 delta variant.


As an individual or family member of someone with a rare disease, it's essential to stay protected, given that there's not enough research as to how the virus affects patients with a rare disease. Continue reading to learn about how you or your loved one can stay protected during these uncertain times.


1) Opt for virtual learning or remote work if possible.


To reduce your risk of infection, see if your school offers distance learning, and if you have a job, remote work may be available. The more people you’re around, the more likely you’ll be exposed to someone carrying the virus, though they may not show symptoms.


If these services aren't available at your school or job, continue to wear your mask as often as possible and stay six feet apart from others.


2) Keep in contact with your disease specialist.


Whenever you have concerns about your medical condition, always speak to your specialist. Your doctor can keep you updated on any information regarding COVID-19 that may impact your health. In addition, during this pandemic, many doctors have begun to offer telehealth services, so there's no need to meet at a clinic in person.


Telehealth services are excellent if you need to check in with your doctor about your condition. You can schedule an online appointment with your physician, which is facilitated over a video streaming platform. However, if you require a physical examination or have an emergency, it's recommended that you seek in-person medical services.


3) Get vaccinated


One of the best ways to protect yourself is to get a COVID-19 vaccine. Whether it's the Moderna, Pfizer, or Johnson & Johnson vaccine, they are all offered free at many clinics and pharmacies to help fight against the spread of the virus. In addition, as of August 2021, the FDA gave full authorization to the Pfizer vaccine, the only FDA-approved COVID-19 vaccination. But, of course, if you don't feel comfortable with the vaccine, you can find other ways to protect yourself.


4) Limit how much you travel


Although visiting Las Vegas or going abroad to Paris seems fun, it's recommended that you avoid traveling at all costs. This tip is crucial for trips that require you to travel by plane. The risk of transmitting COVID-19 is exceptionally high in airports, given that people from all parts of the world are coming together in one place, making it a high-risk area for the virus.


Dealing with this pandemic has been extremely hard for everyone, as it's changed the way we live. However, we must stay vigilant and updated on all COVID-19 news and guidelines. Remember, people with medical conditions, such as a rare disease, have a higher risk of becoming infected with COVID-19, so please continue to stay safe and healthy during these



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