Experience Rare

Community for Rare Disease

A glimpse into the world of rare diseases and the unsung heroes that are pushing for medical breakthroughs.

 

Rare is a feature-length documentary currently in production

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experience

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Feature
Documentary

As filmmakers, we are always looking for stories that connect with people, fuels awareness, and helps bring about social and political change. Last year, when we met Jessica Klein-Foglio, we were so inspired by her story that we turned on the camera and started filming her journey. Little did we know that we were entering into a world that affected so many people’s lives, yet knowledge or options were slim to none.

 

Rare diseases touch the lives of every community throughout the world, and yet little is known about the history of their origins and research progress today. This film will explore the key moments of the history of rare diseases and the continuing shift in the debate over those able to impact new medical discoveries.

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Check Out The Trailer
Our Mission

Rare diseases affect more people than cancer and aids combined, making this one of the most significant health challenges of our time.

With your help, we hope to finish and release this film and push the conversation onto a worldwide stage.

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300M+

People with Rare Disease in the World

7K+

Types of Rare

Diseases

80%

Rare Diseases are

Genetic

5%

Approved Treatments

for Rare Diseases

"I choose to fight. I'll never stop fighting"

- Jessica Klein-Foglio

Meet The Team
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THE DIRECTOR

Nick Kovacic

Nick Kovacic is a founding partner of Digital Cave, a Baltimore-based documentary filmmaking team that has directed and produced three feature-length documentaries: Brewmore Baltimore, 2014, Decanted, 2016 (NETFLIX Exclusive), and Agave | The Spirit of a Nation, 2018 (SXSW ’18 Spotlight Docs). Brewmore has gone on to win an EMMY for Outstanding Achievement in Documentary and was awarded the 2014 Food Filmmaker of Year from N.Y. Food Film Festival. He works and collaborates with a diverse group of filmmakers exploring new mediums that are redefining visual storytelling.

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