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Experience Rare

Community for Rare Disease

Fighting against scientific indifference, legislative gridlock, and the human cost of profit-driven markets, four 

courageous individuals who struggle daily with rare diseases that have no known cure take action—harnessing the power of community, transcending adversity, and forging a new path forward for themselves and millions of others. 

 

Rare is a feature-length documentary currently in production

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experience

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Feature
Documentary

"Rare" is a timely documentary that urgently addresses the overlooked issue of rare diseases. In today's fast-paced world, where medical advancements are rapid, the film highlights the growing number of individuals affected by these conditions. By showcasing their challenges and resilience, the documentary underscores the need to prioritize treatments and cures, especially as profit-driven markets often overshadow human well-being. Against the backdrop of evolving healthcare systems, "Rare" sparks a conversation about equitable access to care and the ethical implications of neglecting these conditions.

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Check Out The Trailer
Our Mission

By telling these stories now, the film seeks to drive change and compassion, urging audiences and policymakers to take action for a more inclusive future.

With your help, we hope to finish and release this film and push the conversation onto a worldwide stage.

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300M+

People with Rare Disease in the World

7K+

Types of Rare

Diseases

80%

Rare Diseases are

Genetic

5%

Approved Treatments

for Rare Diseases

"I choose to fight. I'll never stop fighting"

- Jessica Klein-Foglio

Meet The Team
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DIRECTOR & PRODUCER

Nick Kovacic

Nick Kovacic is a founding partner of Digital Cave, a Baltimore-based documentary filmmaking team that has directed and produced three feature-length documentaries: Brewmore Baltimore, 2014, Decanted, 2016 (NETFLIX Exclusive), and Agave | The Spirit of a Nation, 2018 (SXSW ’18 Spotlight Docs). Brewmore has gone on to win an EMMY for Outstanding Achievement in Documentary and was awarded the 2014 Food Filmmaker of Year from N.Y. Food Film Festival. He works and collaborates with a diverse group of filmmakers exploring new mediums that are redefining visual storytelling.

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