Experience Rare
Community for Rare Disease
Fighting against scientific indifference, legislative gridlock, and the human cost of profit-driven markets, four
courageous individuals who struggle daily with rare diseases that have no known cure take action—harnessing the power of community, transcending adversity, and forging a new path forward for themselves and millions of others.
Rare is a feature-length documentary currently in production
experience
Feature
Documentary
"Rare" is a timely documentary that urgently addresses the overlooked issue of rare diseases. In today's fast-paced world, where medical advancements are rapid, the film highlights the growing number of individuals affected by these conditions. By showcasing their challenges and resilience, the documentary underscores the need to prioritize treatments and cures, especially as profit-driven markets often overshadow human well-being. Against the backdrop of evolving healthcare systems, "Rare" sparks a conversation about equitable access to care and the ethical implications of neglecting these conditions.
Check Out The Trailer
300M+
People with Rare Disease in the World
7K+
Types of Rare
Diseases
80%
Rare Diseases are
Genetic
5%
Approved Treatments
for Rare Diseases
"I choose to fight. I'll never stop fighting"