RARE BEGAN WITH A CHANCE ENCOUNTER BETWEEN TWO OLD FRIENDS
It started in 2019 when myself (co-director Areeg Sweis) and an old friend, Jessica Klein-Foglio bumped into each other in New York City. During that chance encounter, Jess told a remarkable tale of her pivot from singing for the New York City Opera to becoming a full-time advocate for an exceedingly rare disease. So...
RARE WAS BORN
“It was all fortuitous timing. I was searching for a project, and when we reconnected, I was completely inspired by her story.”
That same positive energy has flowed from the other people my co-director Nick and I have connected with in the rare disease community.
THEY TOLD STORIES SO REMARKABLE WE FELT COMPELLED TO FILM THEIR JOURNEYS
Told through interwoven storylines, “Rare” offers first-hand accounts of what it takes to go from diagnosis to treatment, the power of communities coming together, and the increasing belief that anyone can make a difference.
The stories our characters share reframe the question of who holds the power to drive medical breakthroughs.
About 'Dare to be Rare'
We understand that what we wear reflects who we are. Our merchandise serves as a symbol of solidarity, a reminder that we are all connected in this world. It's an invitation to embrace diversity, celebrate individuality, and unite against the barriers that often divide us.
Rare diseases are not as rare as you may think; they affect nearly 400 million people worldwide, surpassing the numbers impacted by AIDS and cancer combined. These individuals are not just statistics; they are part of our global community.
Why Do We Care, You Might Wonder?
The answer goes back to the heart of our documentary, Rare, which illuminates the overlooked issue of rare diseases. In today's fast-paced world, where medical advancements are rapid, the film highlights the growing number of individuals affected by these conditions. These courageous and determined individuals are pushing the boundaries of scientific exploration into the unknown, paving the way for scientific advancements that will benefit us all.
We don't wait for change; we create it. In the face of challenges, we don't retreat; we forge ahead, igniting change in our wake as we emerge on the other side. Just as we challenge you to "Dare to Wear, Dare to Care," we aspire to inspire change.
With every purchase, you're not just elevating your wardrobe; you're elevating lives. 100% of the proceeds directly support the production and impact campaign of Rare. Be a part of a global movement to raise awareness for this silent global health crisis.
Together, we Dare to Wear. Dare to Care.
We will foster global unity
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