Get Involved

Join our community - share your story, help us spread the word, follow us on social media, or join our mailing list. There are plenty of ways to join us in making a real difference. Check out the opportunities to get involved below and contact us if you have any questions. We appreciate your interest.

Share Your Story

Rare diseases have a huge impact on each and every one of our communities, yet it is so rarely talked about at the same magnitude. Together, let's show the scale of impact that rare diseases truly have.

 

How? We want you to share your story. We want to help amplify the voices of those who are living with a rare disease or are caring for someone who does. 

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Be A Volunteer

Our success in helping the Rare Disease community has been made possible thanks to people just like you. With your help we are able to truly make a difference. Sign up today to see how you can get involved in spreading the word.

Join Us

Join our community—so that you’re with us on the journey of watching the story unfold, finishing the film, and maximizing its impact when it is released.  We want to take you with us on this journey, from development all the way through to release.

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